{"id":1726,"date":"2024-12-13T11:46:32","date_gmt":"2024-12-13T10:46:32","guid":{"rendered":"https:\/\/telemon.care\/?p=1726"},"modified":"2026-02-24T11:52:23","modified_gmt":"2026-02-24T10:52:23","slug":"telemedicina-revolucia-v-starostlivosti-o-pacientov-s-cystickou-fibrozou-mudr-zuzana-rennerova-phd-mba","status":"publish","type":"post","link":"https:\/\/telemon.care\/sk\/telemedicina-revolucia-v-starostlivosti-o-pacientov-s-cystickou-fibrozou-mudr-zuzana-rennerova-phd-mba\/","title":{"rendered":"Telemedic\u00edna: Revol\u00facia v starostlivosti o pacientov s cystickou fibr\u00f3zou. MUDr. Zuzana Rennerov\u00e1, PhD., MBA"},"content":{"rendered":"
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Ako sa v posledn\u00fdch rokoch zmenila starostlivos\u0165 o pacientov s cystickou fibr\u00f3zou a chronick\u00fdmi p\u013e\u00facnymi ochoreniami? Ako sa t\u00fdmto trendom k tomu prisp\u00f4sobila modern\u00e1 medic\u00edna?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n
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Zmenilo sa toho naozaj ve\u013ea. U pacientov s cystickou fibr\u00f3zou sme zaviedli skr\u00edning novorodencov, \u010do umo\u017e\u0148uje skor\u00fd z\u00e1chyt a n\u00e1sledne aj v\u010dasn\u00fa lie\u010dbu. \u010c\u00edm sk\u00f4r za\u010dneme s lie\u010dbou, t\u00fdm s\u00fa pre pacientov vyhliadky lep\u0161ie. Zlep\u0161ila sa dostupnos\u0165 liekov a ich \u00fa\u010dinnos\u0165, pri\u010dom nov\u00e9 lieky, ako s\u00fa CFTR modul\u00e1tory, priniesli revol\u00faciu v kauz\u00e1lnej lie\u010dbe. Tieto lieky opravuj\u00fa chloridov\u00e9 kan\u00e1ly, pri\u010dom sa stali vo svete dostupn\u00fdmi pre pribli\u017ene 90 % pacientov s cystickou fibr\u00f3zou. Tak\u00e9to pokroky v\u00fdrazne zlep\u0161uj\u00fa kvalitu \u017eivota a predl\u017euj\u00fa \u017eivot pacientov, pri\u010dom stabilizuj\u00fa klinick\u00fd stav a zni\u017euj\u00fa po\u010det exacerb\u00e1ci\u00ed. K\u00fdm v minulosti bola potrebn\u00e1 \u010dast\u00e1 hospitaliz\u00e1cia a opakovan\u00e1 antibiotick\u00e1 lie\u010dba, dnes je to zriedkav\u00e9. Samozrejme, niektor\u00ed pacienti potrebuj\u00fa hospitaliz\u00e1ciu aj dnes, no v\u00e4\u010d\u0161ina starostlivosti sa pres\u00fava do ambulanci\u00ed.<\/p>\n<\/div>\n<\/div>\n<\/div>\n

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Vo va\u0161ej klinike ste \u00faspe\u0161ne realizovali projekt vzdialen\u00e9ho monitoringu detsk\u00fdch pacientov. Ako tento projekt vznikol a \u010do bolo va\u0161\u00edm z\u00e1merom?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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In\u0161pirovali sme sa zahrani\u010d\u00edm, kde sa v d\u00f4sledku pand\u00e9mie COVID-19 za\u010dal intenz\u00edvnej\u0161ie vyu\u017e\u00edva\u0165 vzdialen\u00fd monitoring aj u pacientov s cystickou fibr\u00f3zou. A my sme sa rozhodli vysk\u00fa\u0161a\u0165 t\u00fato met\u00f3du u detsk\u00fdch pacientov aj na Slovensku. Na projekte sme spolupracovali s technologick\u00fdm partnerom, ktor\u00fd poskytol telemedic\u00ednske sety aj platformu na zber, bezpe\u010dn\u00fd prenos a zdie\u013eanie v\u00fdsledkov s lek\u00e1rmi. V r\u00e1mci vzdialen\u00e9ho monitoring sme sa zamerali na sledovanie spirometrick\u00fdch vy\u0161etren\u00ed a klinick\u00fdch prejavov. Cie\u013eom bolo pos\u00fadi\u0165 vhodnos\u0165 telemedic\u00edny a mo\u017enos\u0165 v\u010dasn\u00e9ho z\u00e1chytu exacerb\u00e1ci\u00ed u det\u00ed s cystickou fibr\u00f3zou. Projektu sa z\u00fa\u010dastnilo 20 pacientov, pri\u010dom z\u00e1kladnou podmienkou bola schopnos\u0165 det\u00ed podst\u00fapi\u0165 spirometriu v dom\u00e1com prostred\u00ed.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Ako hodnot\u00edte v\u00fdsledky pilotn\u00e9ho projektu?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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Na\u0161e sk\u00fasenosti uk\u00e1zali, \u017ee spr\u00e1vny v\u00fdber pacientov je aj v\u00a0pr\u00edpade telemedic\u00edny k\u013e\u00fa\u010dov\u00fd. Nie v\u0161etci s\u00fa toti\u017e schopn\u00ed vykon\u00e1va\u0165 spirometriu tak, aby v\u00fdsledky mali v\u00fdpovedn\u00fa hodnotu. Taktie\u017e sme sa nau\u010dili, \u017ee rodi\u010dovsk\u00e1 a pacientsk\u00e1 spolupr\u00e1ca je ve\u013emi d\u00f4le\u017eit\u00e1. Zistili sme, \u017ee pre rodi\u010dov je monitoring niekedy pr\u00edli\u0161 n\u00e1ro\u010dn\u00fd, a preferuj\u00fa vyplnenie dotazn\u00edkov len v pr\u00edpade zhor\u0161enia stavu. Preto sme z\u00a0\u00favodn\u00e9ho denn\u00e9ho monitorovania pre\u0161li na monitorovanie stavu dvakr\u00e1t t\u00fd\u017edenne, \u010do sa uk\u00e1zalo ako udr\u017eate\u013en\u00e9 pre rodiny aj lek\u00e1rov. Takisto sme si uvedomili, \u017ee dlhodob\u00e9 sledovanie m\u00f4\u017ee zni\u017eova\u0165 discipl\u00ednu, pom\u00f4c\u0165 m\u00f4\u017eu v\u00a0tomto pr\u00edpade opakovan\u00e9 \u0161kolenia a\u00a0samozrejme motiv\u00e1cia.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Vid\u00edte v bud\u00facnosti mo\u017enos\u0165 nahradi\u0165 niektor\u00e9 osobn\u00e9 n\u00e1v\u0161tevy v ambulancii prostredn\u00edctvom telemedic\u00edny?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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Ur\u010dite, ale nie \u00faplne. V pr\u00edpade chronick\u00fdch ochoren\u00ed, ako je cystick\u00e1 fibr\u00f3za, by vzdialen\u00fd pr\u00edstup mohol nahradi\u0165 niektor\u00e9 n\u00e1v\u0161tevy, najm\u00e4 pri stabilizovan\u00fdch pacientoch. Mohli by sme zn\u00ed\u017ei\u0165 frekvenciu ambulantn\u00fdch kontrol, z\u00a0dne\u0161n\u00fdch kontrol ka\u017ed\u00e9 tri mesiace napr\u00edklad na ka\u017ed\u00fdch \u0161es\u0165 mesiacov alebo raz ro\u010dne. V \u00a0pr\u00edpade zhor\u0161enia stavu by sa prv\u00fd monitoring mohol uskuto\u010dni\u0165 vzdialene a\u00a0n\u00e1sledne pod\u013ea klinick\u00e9ho stavu realizova\u0165 ambulantn\u00e9 vy\u0161etrenie. Zn\u00ed\u017eenie po\u010dtu ambulantn\u00fdch vy\u0161etren\u00ed by mohlo u\u013eah\u010di\u0165 situ\u00e1ciu mnoh\u00fdm rodin\u00e1m v\u00a0zmysle doch\u00e1dzania na ambulantn\u00e9 vy\u0161etrenie, absencie z\u00a0pr\u00e1ce, \u010di zo \u0161koly. Zn\u00ed\u017eenie po\u010dtu n\u00e1v\u0161tev zdravotn\u00edckeho zariadenia tie\u017e zni\u017euje riziko nozokomi\u00e1lnych n\u00e1kaz.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Ktor\u00e9 sign\u00e1ly s\u00fa pre v\u00e1s lek\u00e1rov d\u00f4le\u017eit\u00e9, aby ste aj u pacientov sledovan\u00fdch na dia\u013eku v\u010das zachytili pr\u00edpadn\u00e9 komplik\u00e1cie?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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Napr\u00edklad zhor\u0161enie spirometrie \u2013 to m\u00f4\u017ee by\u0165 sign\u00e1lom, \u017ee nie\u010do nie je v\u00a0poriadku. Tieto inform\u00e1cie s\u00fa pre n\u00e1s ve\u013emi cenn\u00e9, preto\u017ee n\u00e1m poskytuj\u00fa objekt\u00edvne ukazovatele stavu pacienta. Ak ich m\u00f4\u017eeme sledova\u0165 pravidelne, dokonca nieko\u013ekokr\u00e1t t\u00fd\u017edenne, je to pre pacienta obrovsk\u00e1 v\u00fdhoda. Vieme tak v\u010das podchyti\u0165 jeho stav a\u00a0podnikn\u00fa\u0165 \u00fa\u010dinn\u00e9 opatrenia.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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M\u00f4\u017ee vzdialen\u00fd monitoring sl\u00fa\u017ei\u0165 aj pri in\u00fdch chronick\u00fdch p\u013e\u00facnymi ochoreniach?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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V bud\u00facnosti by tento pr\u00edstup mohol by\u0165 roz\u0161\u00edren\u00fd aj na pacientov s in\u00fdmi chronick\u00fdmi respira\u010dn\u00fdmi ochoreniami, ako s\u00fa \u0165a\u017ek\u00e9 formy astmy.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Ako by sa do bud\u00facna mohla zmeni\u0165 rola \u0161pecialistov, ak by sa telemedic\u00edna stala be\u017enou s\u00fa\u010das\u0165ou komunik\u00e1cie medzi lek\u00e1rom a pacientom?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n
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Lek\u00e1ri by mohli vyu\u017e\u00edva\u0165 telemedic\u00ednu ako cenn\u00fd doplnok k osobn\u00fdm konzult\u00e1ci\u00e1m, ale osobn\u00fd kontakt zostane st\u00e1le potrebn\u00fd \u2013 najm\u00e4 v pr\u00edpade zlo\u017eit\u00fdch diagn\u00f3z. Sledovanie pacientov na dia\u013eku by mohlo poskytn\u00fa\u0165 d\u00f4le\u017eit\u00e9 inform\u00e1cie pre v\u010dasn\u00e9 odhalenie exacerb\u00e1ci\u00ed a \u00faprav lie\u010dby. Telemedic\u00edna m\u00e1 obrovsk\u00fd potenci\u00e1l pre zlep\u0161enie starostlivosti a optimaliz\u00e1ciu procesov v na\u0161ich klinik\u00e1ch.<\/p>\n<\/div>\n<\/div>\n<\/div>\n

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Vzdialen\u00fd monitoring pacientov ste realizovali spolu s technologick\u00fdm dod\u00e1vate\u013eom Goldman Systems. Ako hodnot\u00edte t\u00fato spolupr\u00e1cu?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n
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Spolupr\u00e1ca bola ve\u013emi pozit\u00edvna. Technologick\u00fd t\u00edm mal u\u017e predt\u00fdm sk\u00fasenosti s implement\u00e1ciou telemedic\u00ednskych rie\u0161en\u00ed pre r\u00f4zne diagn\u00f3zy, tak\u017ee sme mohli \u010derpa\u0165 z ich znalost\u00ed a osved\u010den\u00fdch prakt\u00edk. Ich technick\u00e9 rie\u0161enie Telemon je pripraven\u00e9 ve\u013emi prec\u00edzne, u\u0161etrilo n\u00e1m pri implement\u00e1cii mno\u017estvo pr\u00e1ce a \u010dasu.<\/p>\n<\/div>\n<\/div>\n<\/div>\n

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Ak\u00e9 vylep\u0161enia by ste v r\u00e1mci telemedic\u00edny priv\u00edtali do bud\u00facna?<\/h3>\n<\/div>\n<\/div>\n<\/div>\n
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Z poh\u013eadu lek\u00e1rov je ve\u013emi d\u00f4le\u017eit\u00e9, aby telemedic\u00ednske rie\u0161enia poskytovali relevantn\u00e9 a v\u010dasn\u00e9 inform\u00e1cie. Napr\u00edklad, u\u017eito\u010dn\u00e9 by boli alerty, ktor\u00e9 by n\u00e1s upozor\u0148ovali na abnormality v spirometrii alebo in\u00fdch d\u00f4le\u017eit\u00fdch parametroch pacientov. Ke\u010f\u017ee lek\u00e1ri nemaj\u00fa v\u017edy \u010das prech\u00e1dza\u0165 v\u0161etky z\u00e1znamy, tak\u00e9to upozornenia by mohli v\u00fdrazne zefekt\u00edvni\u0165 na\u0161u pr\u00e1cu a zabezpe\u010di\u0165 v\u010dasn\u00fa reakciu na mo\u017en\u00e9 komplik\u00e1cie.<\/p>\n<\/div>\n<\/div>\n<\/div>\n

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\u010eakujeme.<\/h3>\n<\/div>\n<\/div>\n
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<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

V posledn\u00fdch rokoch sa starostlivos\u0165 o pacientov s cystickou fibr\u00f3zou a chronick\u00fdmi p\u013e\u00facnymi ochoreniami dramaticky zmenila. Od zavedenia skr\u00edningu novorodencov po \u00faspe\u0161n\u00fd pilotn\u00fd projekt vzdialen\u00e9ho monitoringu \u2013 pr\u00ednos technol\u00f3gi\u00ed je zrejm\u00fd v ka\u017edom aspekte mana\u017ementu pacienta. V rozhovore s MUDr. Zuzanou Rennerovou, PhD., MBA, prednostkou Kliniky detskej pneumol\u00f3gie a ftizeol\u00f3gie N\u00daDCH sa dozviete, ako telemedic\u00edna dok\u00e1\u017ee zefekt\u00edvni\u0165 lie\u010dbu a v\u00fdrazne zlep\u0161i\u0165 kvalitu \u017eivota pacientov. Klinika tento rok \u00faspe\u0161ne ukon\u010dila pilotn\u00fd projekt vzdialen\u00e9ho monitorovania detsk\u00fdch pacientov s cystickou fibr\u00f3zou.<\/p>\n","protected":false},"author":2,"featured_media":1727,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[47,27],"tags":[],"class_list":["post-1726","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-telemedicina","category-telemon"],"acf":[],"yoast_head":"\nTelemedic\u00edna: Revol\u00facia v starostlivosti o pacientov s cystickou fibr\u00f3zou. MUDr. Zuzana Rennerov\u00e1, PhD., MBA - Telemon<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/telemon.care\/sk\/telemedicina-revolucia-v-starostlivosti-o-pacientov-s-cystickou-fibrozou-mudr-zuzana-rennerova-phd-mba\/\" \/>\n<meta property=\"og:locale\" content=\"sk_SK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Telemedic\u00edna: Revol\u00facia v starostlivosti o pacientov s cystickou fibr\u00f3zou. MUDr. Zuzana Rennerov\u00e1, PhD., MBA - Telemon\" \/>\n<meta property=\"og:description\" content=\"V posledn\u00fdch rokoch sa starostlivos\u0165 o pacientov s cystickou fibr\u00f3zou a chronick\u00fdmi p\u013e\u00facnymi ochoreniami dramaticky zmenila. Od zavedenia skr\u00edningu novorodencov po \u00faspe\u0161n\u00fd pilotn\u00fd projekt vzdialen\u00e9ho monitoringu \u2013 pr\u00ednos technol\u00f3gi\u00ed je zrejm\u00fd v ka\u017edom aspekte mana\u017ementu pacienta. V rozhovore s MUDr. Zuzanou Rennerovou, PhD., MBA, prednostkou Kliniky detskej pneumol\u00f3gie a ftizeol\u00f3gie N\u00daDCH sa dozviete, ako telemedic\u00edna dok\u00e1\u017ee zefekt\u00edvni\u0165 lie\u010dbu a v\u00fdrazne zlep\u0161i\u0165 kvalitu \u017eivota pacientov. 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